Even With Friedreich’s Ataxia, My Ending Remains Unwritten – Friedreich’s Ataxia News

When I was younger, I believed in destiny wholeheartedly — that my life unfolded with very little input from me. I was just a passenger on the journey of my life, so no matter what I did, I still barreled toward a future written long ago.

My belief in destiny was ultimately an excuse for me to be lazy. After all, no matter what path I took (or didn’t take), my ending would remain the same.

When I was diagnosed with Friedreich’s ataxia (FA) as a child, that belief was starting to crumble. Whatever “Friedreich’s ataxia” was, it was interfering with the kid-athlete I wanted to be. I had to be healed of it soon, so it wouldn’t keep me from my destiny.

When I was about 15, all I knew about my disorder was that it was getting harder for me to walk without stumbling. So to find out how to get rid of it, I typed its foreign-sounding name into a search engine on a bulky PC from the late ’90s. I clicked on the first article that came up. This was the first I’d ever read about FA.

Though most…

Read Full Story: https://friedreichsataxianews.com/columns/2022/05/18/even-friedreichs-ataxia-my-ending-remains-unwritten/

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