Celebrating Signs That Scleroderma Is Becoming Less Rare – Scleroderma News

One evening in January 2014, I answered a call from my doctor’s office. After going over my lab results, a nurse nonchalantly told me I had scleroderma. I pressed her for more information, but she explained that I’d have to wait to discuss it with the doctor.

I’m an impatient person, the type who hunts down a hidden gift, unwraps it, and then rewraps it because I can’t wait until Christmas morning. So I turned to Dr. Google for answers.

Turning to the internet was a mistake

I typed “scleroderma” into the Google search bar, and the first bit of information to appear was a quick overview. I stared at my phone long enough to brand the details into my memory forever. It described scleroderma as “very rare” and “fewer than 100,000 U.S. cases per year.” That was followed by “no cure.” Scleroderma, it said, “can last for years or be lifelong.”

I recall rolling my eyes and shaking my head in disbelief, as if I had a say in the matter. I was convinced I’d find a pill or other treatment if I…

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